Monday, May 21, 2018

White with Black Stripes?

“When you hear hoofbeats, it’s most likely a horse and not a zebra.”

Part of my struggle as a rider and as an equestrian in general has been pain related.  I have always suffered from a bit of poor luck.  Growing up, I had numerous dislocations and soft tissue injuries: shoulders, knee, ankles, you name it, I injured it.
This horse is also injury prone

In college, I started having some additional chronic pain issues.  Headaches, GI pain, and exhaustion.

By the time I ended up in graduate school, it had combined with some serious drug and food allergies and I was very sick indeed and not a very pleasant person to be around.

It was a time where I ended up with a lot of testing, not a lot of results, and many vague labels and syndromes attached to my chart.

I brought up my concerns to my previous primary care physician who shrugged and was indifferent about my concerns.  After a switch in insurance, I saw my new primary care physician who seemed intrigued by a challenge.  I ended up in a rheumatologist's office (and by far the youngest in the waiting room) and have the diagnosis which I've suspected for the past six or seven years: Ehlers-Danlos Syndrome. 

There are different types.  Some much more severe than others.  I am pretty lucky in the sense that my classification doesn't involve some of the most serious consequences.

I am not sure why I feel a bit relieved to finally have just one diagnosis on my chart with everything else still correlating.  The pain is still difficult, but I find the fatigue to be even more aggravating. There are some days that going to the grocery store, I get to the car and just have to sit there before having the energy to drive home.  Work is often a similar affair with just sitting after a shift is done before my hour long commute home.

Anyone else dealing with similar issues?  I have finally ventured onto a couple of EDS related Facebook pages and there are some equestrians, but many more that are concerned on how dangerous equestrian sports are, which is certainly true.  My last major shoulder injury was from showing two excitable yearlings.  I subluxated my pelvis in a dressage lesson the other year and I am having a very difficult time with SI pain on my poor, crooked little horse. 

But in the end, I can't imagine anything else right now?  Even if I am a zebra, I want to hang out with the horses.

1 comment:

Please leave a comment if you like. I love hearing from readers and would like to know that I am not always talking to myself. ;)